Susan G. Komen for the Cure | Statement on Possible Association Between Breast Implants and Anaplastic Large Cell Lymphoma

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Trying to live a healthy life

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Familial Adenoma Polyposis. It has been described as a “ ticking time bomb”. After years of diligent follow up suddenly I acquired a lot more polyps.  I’ve had most of my colon removed,  but if more polyps come back, they might have to do additional surgery.  Once you’ve had hundreds of polyps, it’s hard not to imagine what it would be like to have that major surgery.  The past 11  months have been rough, but i’ve been able to do everything I’ve done before. Just a lot slower. Sometimes it’s an all day encompassing exhausting scenario.  I’ve tried to remain positive.  I won’t lie.  In the back of my mind I’ve been thinking what if it is cancer next time?what if I need more surgery.  The bottom line is that the reason I have some of my colon is because I was quick enough to listen to my body.  Quick enough to have regular screenings.  The hundreds of polyps could not be removed.  This time there isn’t a colon to keep. It could evolve into Cancer. It’s hard to hear others talk about this
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This is going to be a challenge

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  Having a partial colectomy is a huge deal.  I know my family doesn’t want to think about it but it has to be addressed.  This is a hereditary disease.  It’s called Familial Adenoma Polyposis.  There’s no cure. There’s real solid hope of one on the horizon.  My hospital stay was five days and I lost a lot of blood. I was very anemic when I got home. I had to take care of myself though the nurse stopped in to check vitals. I think the worst part of this is getting your body acclimated to eating differently. First of all you don’t know what you can eat. So you stay home a lot. It’s really a difficult position to be in when you don’t know from one day to the next or one hour to the next, just how your body is going to react.  I’m supposed to be gluten-free for Graves’ disease and also eat healthy grains.  That’s not always possible from day to day when you’re faced with many trips because of healthy grains.   I’m blessed that I was smart enough to read my body and get colonoscopies regul
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My two battles with cancer/ interview with Madame Arcati

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Sunday, March 30, 2008 Stephanie Mastini: 'My two battles with cancer' Kevin Spacey's former sister-in-law Stephanie Mastini has suffered two bouts of breast cancer in less than two years. Here she gives a graphic account of dealing with her illnesses - and offers advice to women everywhere. Steph! So glad you're on the mend. Tell us the history of your cancer problems leading up to the recent serious health episode. It all began on a relaxing sun kissed day. I was enjoying the sun and applying protection lotion when I suddenly felt a small pea-sized lump in my right breast. I knew immediately what it was. It didn’t move like the other cysts I had felt before. I have always had an uncanny way of knowing my body. I waited a few weeks to gather my thoughts and get prepared. I should have acted immediately. Act quickly. After a few weeks, I asked my internist to feel the lump. She didn’t think I had anything to worry about but had been my doctor for years
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