To the Friends and Family of Graves Disease Sufferers

Thyroid imbalances of any kind, but most notably Graves’ Disease, have a profound effect on every cell of the body. One of the aspects most noticeable to others is its effects on the brain and emotions. Graves’ Disease can turn even a mild-mannered, loving spouse into someone who is at best often irritable, angry, emotionally unavailable or self-absorbed. Graves’ patients don’t necessarily understand that their feelings originate in out-of-whack brain chemistry, and sometimes blame others for their difficult emotions. These factors contribute to the high divorce rate for people with Graves’ Disease. Sometimes the patient leaves the marriage, believing the spouse is responsible for everything that’s wrong, and other times the spouse can’t take the abusive behavior or lack of normal marital relations, and ends the relationship, not understanding that the problems are a manifestation of an illness. It is quite impossible for someone who has never experienced the attack of Graves’ Disease …

Chemo drug rituxan for Graves


Sailing Through the Storm ~New Breast cancer Medication

July 17, 2017 -- The U.S. Food and Drug Administration today approved Nerlynx (neratinib) for the extended adjuvant treatment of early-stage, HER2-positive breast cancer. For patients with this type of cancer, Nerlynx is the first extended adjuvant therapy, a form of therapy that is taken after an initial treatment to further lower the risk of the cancer coming back. Nerlynx is indicated for adult patients who have been previously treated with a regimen that includes the drug trastuzumab. “HER2-positive breast cancers are aggressive tumors and can spread to other parts of the body, making adjuvant therapy an important part of the treatment plan,” said Richard Pazdur, M.D., director of the FDA’s Oncology Center of Excellence and acting director of the Office of Hematology and Oncology Products in the FDA’s Center for Drug Evaluation and Research. “Now, these patients have an option after initial treatment that may help keep the cancer from coming back.” Breast cancer is the most common f…

Thyroid Hug

UPDATE : My ocular specialist has finally told me that I'm ready for eye decompression surgery.  
  I thank God every day for Dr. Thomas Joly.  He has patients that come from all over the world to see him. And I was blessed to finally find him after five eye doctors .   I knew there
Update February 2018
was something wrong with my eyes but I kept getting the brushoff saying I have dry eyes. I would go blind in the middle of the night sometimes. I've been through two years of steroid infusions. It is a temporary fix until my eyes stabilized . In October I will be having the surgery for decompression. I pray this will be 

the last of my eye surgeries.  With this type of surgery there's always a possibility that I could be cross eyed .  If that happens and I pray it doesn't, than I will have to have another surgery.  Don't ever give uP.  I didn't . 

This is how Graves Disease Feels

There are days like today I can't even get out of bed .
 I have TED ( thyroid eye disease ) so driving can be challenging some days too .  I call myself very lucky to have found a fantastic ocular specialist and every few months I have to have Medrol Infusions (IV therapy ) three times a week .
I also am one of the rare people that have Pretibial Myexedma .  It's a skin condition on my calves that requires steroid cream and is painful and red and there isn't a cure. The best they can do is inject steroids into the areas. It's very disturbing but I would rather be proactive with my disease. 
This autoimmune disease is so complicated and I require regular blood work . 
I had a thyroidectomy so I take medication to keep me alive . It's a syndrome 
In short, it effects my whole system . Endocrine, adrenal, etc . 
This disease is hereditary . 
This disease causes brain fog . 
I thought after two bouts of breast cancer I had had my fill, but it seems I have more challenges .
The …

Fighting Grave's Bravely

It's been a long ride this past year.  I have not been feeling well for the last few YEARS and visited  many doctors. The worst part of this diagnosis besides extreme fatigue, was the not knowing factor ... My eyes had been giving me problems and I went to opthomologists in Georgia than Virginia. I can't begin to tell you the frustration I felt.  My primary care doctor would come in and I would lie on the bed waiting for her, that's how tired I was . I have fibromyalgia and of course breast cancer twice and knew every time I was ill .  The hard part was convincing my doctors that I needed answers . The bizarre fact was one blood test that showed my thyroid levels were changing rapidly .  I was bouncing from hypothyroidism to hyperthyroidism. I was told that I had Graves' disease by my Opthomologist ! I went to endocrinologist and a barrage of blood work ensued . My endocrinologist said DO NOT go to my month long journey through Italy . I went . I did not regret it but I…

~Meet my warrior angel Jamie~

I started this blog to inform and  provide wigs to women that were going through chemo and just could not afford one.  Jamie is strong in her mind and fighting ovarian cancer now.  I sent her the wig you see her in.  I have never met her but I know her through social media. This makes me happy.  I wish I could do more but, I too struggle financially. That will never stop me from helping women like Jamie.  She is a fighter and her smile always has a place in my heart.  She wrote me how much she loved the wig.  This is who I am.  I have done this many times but never put a face to who I have helped, Jamie is the exception because she embodies everything I stand for in my life.  I hope to be doing this for the rest of my life. The whole reason I started this blog was to inform others and tell my journey through breast cancer twice. I had to fight my way back when I discovered I had to have a double mastectomy in 2008. The first bout I had was in 2006.  I found it, so women please keep ch…