www.stephmastini/forgotten ones /

  No one prepared me for my mother's death.  My sister and brother don’t communicate. So just now when I got the winning last question On jeopardy I just lost it.  I remember the usual nights at my parents.  Jeopardy was watched as we ate dinner and how proud they were of me as I answered many of the questions . .   I need closure of some kind.  Why is this happening? I suddenly burst out in tears  . The last year's of my father's life I spent every possible day with them.  My mom was a smart woman, and she wasn’t a vain woman. She made allot of children very happy as a teacher’s aide.  Where is a Mass card?  I never even got one of the promised last remains. My daughter told me there were three containers for her children.   Tears again ... just thinking of that moment I last saw her at the door saying goodbye after I had spent a month with her in  2011. I was really happy I spent that time with her.  She was a s...

WARNING EXPLICIT VIDEO This the procedure I will be having after nipple delay surgery . I always want to know exactly what every procedure will be and this is the procedure that takes the fat from your stomach and places it on top.  I’ve had the new silicone teardrop silicone implants put in a few months ago.  In two weeks they will reconstruct the nipples .  No grafting .  He will construct it from area my nipple will be.  It’s pretty cutting edge stuff.   So, here it goes.  

   When my mother died in October 2017 I called my daughter and she actually answered the phone and we spoke for three hours. We started to get back to mother and daughter again .  I finally got to see my grandson who is almost 4 years old. I didn’t even have a say to what he was calling me. I did not want to be grandma stephanie. I wanted to be his Nonna .  Even that she didn’t like. So I Skyped with my daughter and grandson and I sent so many gifts . After my daughter went to my sisters house for Thanksgiving her whole demeanor changed. So we were texting and I said my goodness you sound as if you were brainwashed. That’s all I said and my daughter answered me “omg now you will never talk or see Everest again” This is all true. Sad but true.  But now it’s time to just let it go. It’s their loss and my immediate family are so negative and cruel but I don’t have to be that way. They can take anything they want.   That’s all  done and over. I ...

 It’s so difficult to have Graves disease. I was diagnosed in 2015.  I knew something was wrong but no one would listen .  Every time I was plagued with strange symptoms, I did not only not get the right help but I had lost my family and I was alone in a strange town in GA. I had moved from Virginia to Seattle again to be near my daughter and she had no desire to have any relationship. Then my brother John Mastini who I was never close to, begged me to go to Georgia so I went from Seattle to Georgia. Why? I was trying to piece our family back together after such division. My Dad was hurting for years, not just physical but emotional pain. My brother moved from New Jersey to a remote area in Georgia and his teenage kids lived there with their dysfunctional alcoholic mother .  My father asked to see the kids over and over but my cold hearted brother would never come to VA.  I will tell you when he finally arrive...

It’s so difficult to have Graves’ disease and It’s getting very emotional for me because I have everything that you can think of that most people don’t have when they have Graves’ disease. I was diagnosed  in 2015.  I knew something was wrong but no one would listen .  I had breast cancer 2006 and 2008 with double mastectomy and reconstruction. .Every time I was plagued with strange  symptoms, I did not only not get the right help but I had lost  my family and I was alone in a strange town in GA. I had moved from Virginia to Seattle again to be near my daughter and she had no desire to have any relationship. Then my brother John Mastini who I was never close to, begged me to go to Georgia so I went from Seattle to Georgia. Why? I was trying to piece our family back together after such division.    My Dad was hurting for years not just physical but emotional pain. My brother moved from New Jers...

                                        An Armor of Hope How to Diagnose and Treat Breast Implant–Associated Anaplastic Large Cell Lymphoma March 2018 https://journals.lww.com/plasreconsurg/Fulltext/2018/04000/How_to_Diagnose_and_Treat_Breast.40.aspx “As of February 2018, 518 unique cases of BIA-ALCL across 25 countries have been reported” “The World Health Organization currently classifies BIA-ALCL as a lymphoma at all stages.” “It is important to note that all of these designations and nomenclatures are still referring to a cancer. Patients with BIA-ALCL can have progression of their disease, lymph node involvement, and death as a result of disease, particularly with significant delay in diagnosis or sub-optimal treatment.” “It remains unclear what effect inadvertent spillage of the seroma during capsulectomy has on local seeding of disease; however, clin...

Thyroid imbalances of any kind, but most notably Graves’ Disease, have a profound effect on every cell of the body. One of the aspects most noticeable to others is its effects on the brain and emotions. Graves’ Disease can turn even a mild-mannered, loving spouse into someone who is at best often irritable, angry, emotionally unavailable or self-absorbed. Graves’ patients don’t necessarily understand that their feelings originate in out-of-whack brain chemistry, and sometimes blame others for their difficult emotions. These factors contribute to the high divorce rate for people with Graves’ Disease. Sometimes the patient leaves the marriage, believing the spouse is responsible for everything that’s wrong, and other times the spouse can’t take the abusive behavior or lack of normal marital relations, and ends the relationship, not understanding that the problems are a manifestation of an illness. It is quite impossible for someone who has never experienced the attack...

  An update I have not heard a word from anyone in my family.  My daughter still, two years after my last Skype with her still ignores me. I have missed another two years of my grandsons life.  When will this end?  When Everest can read ? Just google my name Everest.  It’s all there.  The truth.  My grandson was born three years ago and his name is Everest. My daughter Cara Podenski, didn't think I was important enough to see him, talk to him, or even know his name for over three years.  When my mother passed away in October I picked up the phone to call Cara .  I was in shock since I was not even told my mother was in a nursing home. I had been blocked by my daughter for so long but it didn't stop me from trying .  When she picked up the phone it was quite a surprise.  I honestly had instinctually thought to call my daughter and we talked for three hours.   Later, I was introduced to my grandson and I was "G...

Isn't it ironic ? I had a double mastectomy with reconstruction as many of my readers know.  That alone was very challenging .  I caught both breast cancers early enough so that I didn't need chemotherapeutic therapy . I had three surgeries just on my implants.   I've had to have them removed twice. Once was because they found silicone artifacts in my chest. They took the silicone implants out. I opted for Saline implants but they looked awful.  If you're going to have reconstruction I do NOT suggest Saline . They are not aesthetically pleasing.. Two  months ago I decided to take the saline implants out, to put the new silicone implants in. The shape has changed from round to a teardrop and they are texturized and adhere to the skin. They are a safer and better quality. With having graves disease it is always a challenge and this was no exception . My Graves specialist wants me to try a chemo drug called Rituxan.  How ironic I was able to avoid...

July 17, 2017 -- The U.S. Food and Drug Administration today approved Nerlynx (neratinib) for the extended adjuvant treatment of early-stage, HER2-positive breast cancer. For patients with this type of cancer, Nerlynx is the first extended adjuvant therapy, a form of therapy that is taken after an initial treatment to further lower the risk of the cancer coming back. Nerlynx is indicated for adult patients who have been previously treated with a regimen that includes the drug  trastuzumab. “HER2-positive breast cancers are aggressive tumors and can spread to other parts of the body, making adjuvant therapy an important part of the treatment plan,” said Richard Pazdur, M.D., director of the FDA’s Oncology Center of Excellence and acting director of the Office of Hematology and Oncology Products in the FDA’s Center for Drug Evaluation and Research. “Now, these patients have an option after initial treatment that may help keep the cancer from coming back.” Breast cancer...

UPDATE : My ocular specialist has finally told me that I'm ready for eye decompression surgery.     I thank God every day for Dr. Thomas Joly.  He has patients that come from all over the world to see him. And I was blessed to finally find him after five eye doctors .   I knew there Update February 2018 was something wrong with my eyes but I kept getting the brushoff saying I have dry eyes. I would go blind in the middle of the night sometimes. I've been through two years of steroid infusions. It is a temporary fix until my eyes stabilized . In October I will be having the surgery for decompression. I pray this will be  the last of my eye surgeries.  With this type of surgery there's always a possibility that I could be cross eyed .  If that happens and I pray it doesn't, than I will have to have another surgery.  Don't ever give uP.  I didn't . 

There are days like today I can't even get out of bed .  I have TED ( thyroid eye disease ) so driving can be challenging some days too .  I call myself very lucky to have found a fantastic ocular specialist and every few months  I have to have Medrol Infusions (IV therapy ) three times a week . I also am one of the rare people that have Pretibial Myexedma .  It's a skin condition on my calves that requires steroid cream and is painful and red and there isn't a cure. The best they can do is inject steroids into the areas. It's very disturbing but I would rather be proactive with my disease.  This autoimmune disease is so complicated and I require regular blood work .  I had a thyroidectomy so I  take medication to keep me alive . It's a syndrome  In short, it effects my whole system . Endocrine, adrenal, etc .  This disease is hereditary .  This disease causes brain fog .  I thought after two bouts of breast cancer I ...